Skip to main content

'Conversations About Activism and Change: Independent Living Movement Ireland and Thirty Years of Disability Rights' edited by Sarah Fitzgerald

This compelling anthology of interviews features individuals who have devoted their lives to activism. It has been brought together by Sarah Fitzgerald and the Independent Living Movement Ireland (ILMI) and commemorates 30 years of that organisation's existence. These are the stories of the disabled activists in their own words and illustrate not just their dedication to their cause, but also the very human aspect of their struggle, underscoring the importance of friendship in sustaining their activism.


It is tragic to witness, the creeping prevalence of anti-science rhetoric within the dialogue of Ireland's Disabled Persons' Organisations (DPOs), particularly when it concerns autistic people. Empirical evidence can shine a light on our way forward, outlining the steps to progress. However, it is crucial to remember that it is the individuals - the ones who are meant to benefit from this evidence - who must ultimately decide the path to follow. Science should serve humanity, not merely exist as an end in itself, devoid of guiding values. Much to their credit, these contributors diligently evade this pitfall. Often the contributors reflect on the alliances and the intersectional work that can not only claim rights for disabled people but also progress other social issues, including the rights of women, children, workers and the travelling community. It is the courage and commitment of communities like these that progress our entire society forward, in so many instances we are led from the margins. Issues that were once on the fringes have been brought into the mainstream by the sustained work of these people. But progress is not linear and the pendulum can swing the other way.

The prevalence of pseudo-scientific thinking will slow our progress, divide our communities and harm those subjected to its many forms of quackery. These are the stories of our leaders, and we owe them, but the journey is far from over; there is a long road left to travel.

Comments

Popular posts from this blog

Americanah a novel by Chimamanda Ngozi Adichie

Americanah is a hymn to the complexity of our emotional lives. It is a novel where many things are said, but these are the things that I heard; 1) there is comfort in cheap chocolate. 2) she shows us how arbitrary brutality pervades our world and some of this is not intentional cruelty; it's just the systemic faceless kind. 3) Harm is a temporal thing, it can happen in an instant and we'll live with it for the rest of our lives. This is obvious in a car crash, but here it is of the emotional kind. Growing into a malignant burden that corrupts the rest of our relationships, and each of us kills the things we love. 4) It's a book about place and identity that rails against those narrow confines of identity. Her characters resist all attempts to be defined or sully themselves in narrow trenches of how to be. 'Ring out false pride in place and blood' 6) Adichie is a woman, who knows her place and that place is among the classics. She has a character joke about the...

King Leopold's Ghost by Adam Hochschild

When I started this book, George Floyd was alive.  His name was known only to his loved ones, friends and community.  Now his daughter is without her Daddy, and we know his name.   Imagine a mountain of corpses, George's body is flung somewhere near the top of this pile.  I say near the top since bodies have been added since his murder.  Hochschild's points to the nameless dead, beneath poor George's black body.   Adam Hochschild’s King Leopold’s Ghost needs to be widely read. While it deals with the particular horrors of King Leopold’s reign of terror in the Congo, it makes clear that the butchery characteristic of King Leopold’s reign were features of all European colonies. I first moved from Ireland to England in 1995.  Quickly making English friends, one of the striking observations was how these otherwise well informed and articulate individuals knew next to nothing about Ireland, it’s history and how that history informed it’s current p...

How to win friends and influence people. Dale Carnegie. A review and some thoughts.

Dale Carnegie's 1936, 'How to Win Friends and Influence People,' has remaining in continuous print since 1936, selling over 30 million copies.  Something is selling here.  Carnegie has distilled a distinct ideology one deeply ingrained in the Western corporate world’s ethos of mandatory optimism.  While Carnegie's insights are not inherently flawed, their luminescence casts a particularly dense umbra. Carnegie's book aligns with something we know about ourselves, echoing George Orwell's observation: 'The best books tell you what you already know.' The book plays into our innate longing for acceptance and affirmation, fostering a confirmation bias where we gravitate towards ideas that affirm our pre-existing beliefs. Reading Carnegie I could not help thinking of it's antithesis. Arthur Miller's 'Death of a Salesman' (1949) delves into the perilous consequences of such biases.  Willy Loman, epitomises the tragic fallout of conflating charm,...